Photo of Max — Multiple Sulfatase Deficiency Building
Max's transformed room

Max

Max has a rare genetic disorder often called childhood dementia, causing progressive loss of skills. Now fully dependent on care, he needs a safe, accessible bathroom to support his comfort, dignity, and daily needs.

Accessible Bathroom 2026

The Story

Max was born with a rare genetic disorder that prevents his body from clearing cellular waste. This causes a harmful buildup, especially in his brain, that slowly destroys his nervous system. Often called childhood dementia, the disease robs children of the abilities they once had, one by one.

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Room reveal

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