The Story
Axel was born at 28 weeks and has shown remarkable strength ever since. Axel lives with cerebral palsy dystonia, a movement disorder that causes painful, involuntary muscle contractions. This condition affects his movement and touches every part of his daily life. He has overcome more challenges than most kids his age, including undergoing major hip surgery and receiving a pain management pump to help him feel better. Even through all this, he keeps his spirit strong.
Axel is bright, joyful, and full of personality. He loves to sing. He spins his wheelchair with pure delight, skillfully operating it with his head. He is also a big HGTV fan and has strong opinions about good design.
His parents are true heroes. They work opposite shifts in the housekeeping department at Northside Hospital and arrange their lives so Axel never stays alone. When he comes home from school, someone who loves him always welcomes him. Their dedication stands out, but love alone cannot make their home accessible.
Since his bedroom and bathroom are not wheelchair-accessible, Axel cannot move around his home independently. He sleeps in his parents' room, separated from his twin brother, Angelo, and misses out on the simple, everyday moments that brothers should share.
With your support, SOARD will create the accessible bedroom and bathroom Axel deserves. This space will truly belong to him, giving him independence, privacy, and the chance to be a kid with his brother again.
Axel has been fighting since the day he was born. Now it is our turn to support him.
Axel has been fighting since day one. Now it's our turn to show up for him. A gift of any size brings him one step closer to the safe, accessible home he deserves.
