Photo of Damon (DJ) — Spina Bifida & Hydrocephalus

Damon (DJ)

At 24 weeks gestation my life changed forever. I was told that my baby had spina bifida and that his life would be tumultuous at best.

Accessible Bathroom, Dream Bedroom 2023

The Story

At 24 weeks gestation my life changed forever. I was told that my baby had spina bifida and that his life would be tumultuous at best. It was suggested that I terminate my pregnancy as it was predicted that his quality of life would be very low. I then sought the opinion of some amazing doctors at Children's Healthcare of Atlanta who told me that the information I was provided would not be DJ's story.

The Reveal

Video thumbnail for Damon (DJ)'s story

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