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🙂 12 years old 💛 Cerebral Palsy, Hearing Loss, Hip Dysplasia, Chronic Lung Disease & Global Developmental Delays
Photo of István

Istv\u00e1n had a traumatic beginning, being born a micro-preemie at 25 weeks gestation. Only weighing 1 lb, 6 oz, he fought hard to live. Being a micro-preemie comes with so many challenges - it seems like every decision a parent makes to ensure the baby's survival comes with a set of lifelong effects. For instance, Istv\u00e1n contracted MRSA in the hospital (which required broad-spectrum antibiotics) and was on a ventilator for months. One or both of these life-saving measures is more than likely responsible for his unilateral hearing loss. Istv\u00e1n also has hip dysplasia and cerebral palsy, among other medical challenges.

Nonetheless, Istv\u00e1n does not allow any of his diagnoses to hinder who he is and who he wants to be. He is a very joyful and fun child, always finding a joke to make you laugh or spouting random history facts that remind you of your middle school history class that you probably loathed. In his free time, Istv\u00e1n dreams of being a history teacher with an RV, so he can enjoy random camping trips across the US. Istv\u00e1n is an avid reader - reading mostly history books about World War II, the American Revolution, and Ancient Rome. As a homeschooler, TV time is limited in their household. However, when Istv\u00e1n is offered time to watch television, he loves watching the History Channel, documentaries, and movies in black and white. Istv\u00e1n's blissful character proves that an extraordinary beginning does not determine your life's path.

"Istv\u00e1n's blissful character proves that an extraordinary beginning does not determine your life's path."

Photos by Nicole Bryant

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