Dylan has MECP2 duplication syndrome, a rare genetic condition that causes significant developmental delays, low muscle tone, limited verbal communication, frequent infections, and progressive neurological challenges that require lifelong care. Because he is medically fragile and receives home hospital care, where everyone comes to him, Dylan spends nearly all of his time at home, and his bedroom serves as the center for his education and therapies.

His mother, Natalia, is a devoted single parent who has dedicated her life to caring for and advocating for Dylan. She works tirelessly to ensure that, despite his medical complexities, he experiences the joys and milestones of being a teenager.

And Dylan definitely has a teenage personality. During schooling, he has been known to pretend he's asleep to avoid his assignments, only to crack one eye open to make sure his teachers notice. His quiet humor and playful spirit shine through, reminding everyone around him of the bright young man he is.