Colin was diagnosed at age 10 with STXBP1, a rare genetic neurological disorder that affects how the brain communicates with the body. The condition leads to developmental delays, muscle tone challenges, seizures, and significant impairments in speech and motor skills.

Colin is non-verbal and can only walk short distances with assistance. He will require lifelong care, and as he ages into adulthood, his parents need support to ensure their home can safely meet his changing needs.

Safely lowering himself into a traditional bathtub is difficult and increasingly unsafe as he grows. Colins parents are working hard to support his independence wherever possible, including encouraging him to use the toilet.